It’s been a long time since I updated, but I felt it was important to post today. I missed Autistics Speak Day at the start of the month and just seemed to lose a lot of steam (pun intended).
November is a hard month. It contains Kitty’s birthday and the mixed feelings I have about that (glad she has a birthday, not glad I can’t be there with her for it). It is also often a time of year I find myself increasingly depressed; as much as I truly enjoy winter and late fall, I still have a biological reaction to it that is a lot less joyful and a lot more sobbing. I’m also having a weird sense of loss this year, because Greensboro doesn’t get snow. Last winter had a shitton of snow (that’s a precise measurement) and I will be lucky to get a flurry this year. I like snow–except digging my car out.
This November has been especially difficult: I still have a job which I do not like and feel is not ethical; I do not have a replacement job lined up; I have started to come out to coworkers about this autism stuff and that’s led to what feels like bullying, even though I strongly suspect it’s just meant to be friendly teasing (and then I feel crappy about feeling bullied, because I really did have a true bully at my previous job and this is pretty minor in comparison); I had to pass up a last-minute eval appointment with TEACCH because I couldn’t get off work; I’ve been sick twice this month, totalling about 14 of 20 days so far. I think I actually prefer the sporadic and scarily violent times I was hit or kicked at my previous job to my 10+ small kicks, hits, pinches, slobbers, and otherwise “affectionate” violent and upsetting touches every day.
I am sick of being assaulted, sick of being sick, sick of yelling at people to stop doing perfectly reasonable things like stimming because I’m supposed to, sick of feeling like a traitor to all my fellow autistic people because I get so damn frustrated that I understand the autistic line of thinking many of the people I work with follow, but due to a 4-5 standard deviation gap in our verbal and processing speeds I can’t figure out how to help them. How do I explain to someone that, actually, I totally get what it’s like to want to hit yourself or bite your hand and have a meltdown, and this is a good way to defuse that feeling rather than having the meltdown? I understand, but I can’t communicate that meaningfully, so all my insights into how to help are useless. I can see that the autistic man with overwhelming ADHD and difficulty with reading needs to have all information blocked out on the page so he can concentrate on the letters; I can’t figure out how to convince him to use the tool I made. Then we both get frustrated and he hits or kicks me and I have to go have the same meltdown I had to scold someone for an hour earlier.
I am sick of feeling utterly alone. Kitty is there, and lovely, but long distance hurts in a physical sort of way. I thought that I had plans for Thanksgiving, but they weren’t a priority.
So…whining wasn’t actually what I wanted to write about. I wanted to write about how today is Transgender Day of Awareness and how I have come to identify as genderqueer over the past couple of years, and how I’ve never come out except to Kitty before. But now I’m crying instead, so I think this is done.
Oh, and my name has been changed.
I have a massively awesome idea for a DM Cornish/Half Continent fansite.
I have the means (ish) to create it.
I have the desire to do it; in fact, it is fast eating up a lot of my headspace in a dangerously compulsive sort of way. Actually, the Half Continent in general has, I must acknowledge, reached a level of obsession only known to autistics and 12 year old girls.
What I’m lacking is the spoons. I’ll need to learn new coding programs to create what I want to create, and then there will be a lot of data imput into those programs. I know I have a strange mix of ability within one specific executive function (perseverance or grit)–for short-term projects, I’m okay, and I’m one of the most persistent people I know for long-term goals. There’s even a research study that I participated in, with people I know to corroborate my answers, that noted I have more grit than most people my age (I blame autism, as with so many things). But medium-term stuff…eh…I kind of have a history of terrible failure. Like this one time where I tried to write a master’s dissertation. Ha.
So I have this history of not being great at doing medium-term projects. Based on my completely fabricated estimates, this would be one such thing. The only thing worse than not giving into my compulsions and starting this project would be not finishing. And so, I procrastinate, which makes the compulsion part worse, but puts off my fear of self-caused failure. But procrastination also provides some measure of stress relief I don’t get during my work week (update: still like hell), so it’s a coping mechanism, too.
Basically, living in my head sucks right now and I would like $10,000 so I can quit my job and move immediately to Melbourne. Please.
New name has been chosen and paperwork completed; I’ll apply at the courthouse tomorrow.
More importantly, with a new name comes the final impetus to order business cards for etsy. Yay!
Also, not dead.
Also, feel free to guess what I gave myself as official titles. Hint in the tags.
I’ve been thinking about inertia and perseveration lately. I thought I’d been thinking about depression and my own early signs of a life-long sprint from black clouds, but apparently the part of my brain that ruminates without my knowledge was busy at work on something altogether separate.
I’ve talked about inertia before–I should probably start using a tag for it and the other things I mention regularly. And I’ve talked about perseveration, and how I think it’s a useful, adaptive process in working through executive function difficulties (see the link to rumination).
A quick recap: inertia is the tendency to keep doing what you’re doing rather than change paths (with a nod to Newtonian physics for the basic concept), and perseveration is going over something endlessly, either because it provides comfort, stimulation, or a solution to a problem or otherwise fills some need.
I think they are the same thing, or facets of a larger single thing. And I think that thing is at the heart of difficulties in choice making in autism spectrum disorders and at least partially to do with why concrete plans are necessary. I’m not sure if it is part of the larger executive function or a related but separate thing.
Inertia has negative connotations, at least for me. Inertia is continuing to do something that isn’t really great for me (like not eat or not sleep) because it is easier than the alternative (procuring food or getting ready for bed–which usually entails saying goodbye to Kitty, something I loathe). Inertia means staying in bad jobs because it is easier than finding new ones. Inertia means multiple degrees in a field which doesn’t hold a career or major interest to me, because considering a change took too much thought and spoons to be done at a pace that would have allowed me to change.
Perseveration has a mixed connotation. Perseveration is going over and over songs until I know them by heart and can sing them pitch, tone, and word perfectly. Perseveration is almost always thinking about one of the few topics I am especially interested in, like autism or MBT. Perseveration is the way my brain works to process complex information by letting it tumble around and then finding notable, interesting things in what that information sticks to inside my head. Perseveration is eating the same food for three, four, five days in a row all. the. time.
Both are the inability to change topics or actions without a strong desire to do so. That desire can be internally or externally motivated, emotionally or physically motivated.
This inability to move off a single track can make it difficult to impossible to make decisions and choices. I know that the DSM is too strictly categorized for this to ever happen, but perhaps autism should be considered partially an anxiety disorder.
I wanted to buy a computer–a laptop. I researched laptops for months, learning about screen types and the inner workings of a machine, learning about various OSes and interfaces. I learned what my price range would need to be to get something like what I wanted (a tablet with the ability to write directly on the screen). And then I didn’t do anything. I knew what I wanted, but I was absolutely paralyzed by the idea that as soon as I made a choice a better, cheaper, more awesome choice would appear and thus be unavailable to me. I finally bought my laptop only because it was on woot that day and the price was about half what I’d been prepared to pay previously. I needed that external limitation to make a decision: woot is only one item per day and there is no guarentee the item will ever turn up again, the price is drastically lower than anywhere else online, and there is a limited number of units available–but you can’t tell how many until it’s sold out. I’ve had this laptop for about two years now and I suspect I would still be dithering about getting the BEST LAPTOP EVAR had I not been constrained by this.
Having choices makes choosing extremely difficult when you tend towards this style of thinking. The more choices I have, the more likely I am to fall back into the holding pattern of inertia and just not choose. When I am hungry, I need to have explicit options rather than an open ended “what do you want?” because the latter will only lead to frustration and upset. (Kitty, in her wisdom, knew this years and years ago and tolerated my saying over and over that I hated planning meals and that it made food unappealing, and to her I apologize again for being a shit. She was completely right and knew me better than I knew myself at the time.) Having a schedule means I actually get things done. Without, I am likely to spend all day online, playing games or looking at tumblr.
Unfortunately, none of these things allows me to write coherent blog posts sometimes!
To whomever got to my site by googling “branden rose” “miss europe,” I have news on that front and will also be posting some horrible/awesome fic at some point in the future. I also realized that all of my map posts and pictures were lost in the shuffle when I changed hosts and will reupload them shortly.
Currently ruminating on the ineffectiveness of the DSM due to overlapping difficulties after reading a piece about preschool-aged depression. I’m not sure if I had started that young, but I think it’s arguable that I’ve been depressed off and on my whole life. Currently looks like we’re in an on phase! Will write when I have it sorted.
I have decided that I will post about my work experiences under a password protection. Please email me or comment here and I’ll email you the password. Thanks.
I’m at a bit of a loss for what to read online lately.
In May, the Autism Hub disbanded itself. One of the bloggers who had been a hub member was bullying others on the hub and many of my favourite bloggers removed themselves from the group a few days before it was officially disbanded. I’ve tracked down most of the blogs I enjoyed reading there, but find it much more difficult to keep up to date with them now. I’ve tried using an RSS reader, but I’m not very good at remembering 1. to add blogs and 2. to visit the reader to see if they’ve posted. The Autism Hub had been a really great website for a few years, a respository of science-based blogging about autism by people on the spectrum, parents of kids on the spectrum, and professional researchers and educators. It introduced me to many of my favourite blogs. After the hub came down, most of those bloggers have stopped writing.
In June, Jezebel got a new EIC. With her came bannings, destarrings, and general discord. I stopped reading. I’ve been to groupthink off and on, but I haven’t been on the main page much at all. In the past two or three days there’s been a few articles of substance, the most worthwhile writing in months. I’m really hoping that this trend will continue and Jez will return to its former glory as my absolute favourite website. In its heydey, Jez was full of smart, feminist writing with an eye to intersectionality. It discussed the political and personal with humour and research, and the commenters were snarky without being mean (except to trolls) (this is a difficult line to walk and one they’ve lost entirely). Corrections were issued if the Editors made an error, often quickly. The new EIC calls commenters assholes and seems to encourage bodysnarking.
In July, ScienceBlogs had its own implosion. I missed it; as I’ve noted before, when I’m feeling spoonless I can’t muster the energy for SciBlogs, even though it often renews my spoon pile. What appears to have happened is Pepsi bought a blog spot there without clear distinctions being made on said blog that it was a paid spot (Sciblings are invited and paid for their efforts, usually). Many of my favourite Sciblings have left the website as a result, though the Pepsi blog has been pulled. There’s a disaspora of science writing, now, and, again, RSS is not my friend.
Please, gentle readers, suggest places for me to read. I’m looking for political and sciencey blogs with a liberal, feminist bent, preferably explicitly anti-racist and anti-ableist. Hubs or group blogs are very welcome.
…is that I like spreadsheets, organization, and Kate Miller-Heidke.
Just got done making a spreadsheet that shows the titles of the songs from which I’ve pulled titles, the songs in the official canon I haven’t used yet, the songs that are official or semi-official canon but are covers, and the demos which have any sort of name. This is actually the third spreadsheet of its sort, as I have one keeping track of the number of times I use a song and one that lists the song, the lyric, and the date.
So I’m feeling a bit compulsive and pleased, now. And tired. Tried to go to the library, but the lights are made of some sort of migraine-creating forcefield that also happens to emit visible light, because within ten minutes my eyes and head ached. I feel sort of spoon-drained now.
I’ve been blogging here for a year, and nearly a hundred posts.
There have been two Kate-lyric exceptions (both for MBT fangirling) and this will make my 97th published post. In this time, I have:
-Used lyrics from “Caught in the Crowd,” “Dreams,” and “The Truth” six times each (fun fact: I don’t like “The Truth”!)
-Used lyrics from “Blah Blah Blah,” “Day After Christmas,” “Our Song,” and “Out and In” five times each
-These seven songs account for 39% of my post titles
-I’ve used 34 songs, 32 of which are part of the official discography (including Elsewhere, Kate’s previous band). Including Elsewhere there are officially 54 songs (not including multiple releases or versions of a song), and I have an additional 32 or so demos. I think I’m going to have to make an effort to use all of the released songs for a title in the coming year. No promises.
In less compulsive, more personal news, I’ve had a bunch of interviews for jobs. The one I like best is for a group home and assistance organization in Chapel Hill who work with kids and adults with intellectual disabilities, developmental disabilities, and some neurological disorders. In practice this means a lot of people on the autism spectrum, some with Down Syndrome, some with CP, many with more rare disorders and disabilities, and a huge variation in levels of assistance needed. I knew it would be a good fit when the interviewer went off on a long tangent about how their clients are people and have every human right we do (I guess I passed for NT yesterday), even if they also need some help with ADLs or holding down a job. He used some language I only hear in the disability rights movement and stressed that you have to respect everyone as an individual or it would never work. I have a follow up interview tomorrow (after the first yesterday), so hopefully it works out! I’ve also interviewed for an in-home counselling position, and didn’t get a job at a local bookstore–but I did get an interview at a sister store later this week.
AT NO POINT DID I BREAK DOWN INTO SOBS OF FRUSTRATION OVER THE AMOUNT OF MONEY I NEED TO SAVE TO SUCCESSFULLY MOVE TO MELBOURNE.
I credit the cat and his soft, soft tummy for this. Little known fact: sticking your face in a cat’s side and breathing deeply is incredibly good for destressing.
I’m looking for something that will keep my brain occupied. I love anagramming and the last phrase was very successful. I want a two or three word phrase (maybe four, if one is an article) that is easy to remember and has 20-25 letters. The last one was “the very hungry caterpillar” and it worked really well. Suggestions?
Grading People from Rolling Credit on Vimeo.
A short commentary on the use of the terms “high functioning” and “low functioning” as applied to autistic people
My name is Ali, though sometimes it's Eliot.
I have many tumblrs, which you are welcome to also visit:
The Polite Yeti - My personal tumblr, full of silliness.
Fuck Yeah, Kate Miller-Heidke - the only active Kate fan site, which is baffling.
The Branden Rose - the only active Monster Blood Tattoo fansite, which is less baffling.
I also have a semi-successful etsy shop, which you should visit, below.
Please buy things from me:
A brief history: