I find that when people on the autistic spectrum fail to understand someone’s reaction, this is seen as ‘lack of empathy’ – but, when someone who is not on the autistic spectrum fails to understand the reaction of an autistic person, this is seen as a case of ‘autistic people are a puzzle’ and a justification for representing us as a jigsaw puzzle piece.

I’ll just leave that there. I read it here.

I’m at a bit of a loss for what to read online lately.

In May, the Autism Hub disbanded itself. One of the bloggers who had been a hub member was bullying others on the hub and many of my favourite bloggers removed themselves from the group a few days before it was officially disbanded. I’ve tracked down most of the blogs I enjoyed reading there, but find it much more difficult to keep up to date with them now. I’ve tried using an RSS reader, but I’m not very good at remembering 1. to add blogs and 2. to visit the reader to see if they’ve posted. The Autism Hub had been a really great website for a few years, a respository of science-based blogging about autism by people on the spectrum, parents of kids on the spectrum, and professional researchers and educators. It introduced me to many of my favourite blogs. After the hub came down, most of those bloggers have stopped writing.

In June, Jezebel got a new EIC. With her came bannings, destarrings, and general discord. I stopped reading. I’ve been to groupthink off and on, but I haven’t been on the main page much at all. In the past two or three days there’s been a few articles of substance, the most worthwhile writing in months. I’m really hoping that this trend will continue and Jez will return to its former glory as my absolute favourite website. In its heydey, Jez was full of smart, feminist writing with an eye to intersectionality. It discussed the political and personal with humour and research, and the commenters were snarky without being mean (except to trolls) (this is a difficult line to walk and one they’ve lost entirely). Corrections were issued if the Editors made an error, often quickly. The new EIC calls commenters assholes and seems to encourage bodysnarking.

In July, ScienceBlogs had its own implosion. I missed it; as I’ve noted before, when I’m feeling spoonless I can’t muster the energy for SciBlogs, even though it often renews my spoon pile. What appears to have happened is Pepsi bought a blog spot there without clear distinctions being made on said blog that it was a paid spot (Sciblings are invited and paid for their efforts, usually). Many of my favourite Sciblings have left the website as a result, though the Pepsi blog has been pulled. There’s a disaspora of science writing, now, and, again, RSS is not my friend.

Please, gentle readers, suggest places for me to read. I’m looking for political and sciencey blogs with a liberal, feminist bent, preferably explicitly anti-racist and anti-ableist. Hubs or group blogs are very welcome.

I go in tomorrow morning to fill out paperwork for HR to begin my new job. I’m waiting for Stina and Dylan to do some reference letters and send them along, but I’ll get them when they come–no major concern.

My major concern is falling into a pattern of presumed incompetence. It was coincidental that I found this blog post today about the least harmful assumption (presuming competence even when others do not) as almost all of the people I will be working with have been diagnosed with intellectual disability (and many of them with autism). I need to work and remember that their diagnoses may not be correct and that any communication is welcome. I hope I’m up to the task.

…is that I like spreadsheets, organization, and Kate Miller-Heidke.

Just got done making a spreadsheet that shows the titles of the songs from which I’ve pulled titles, the songs in the official canon I haven’t used yet, the songs that are official or semi-official canon but are covers, and the demos which have any sort of name. This is actually the third spreadsheet of its sort, as I have one keeping track of the number of times I use a song and one that lists the song, the lyric, and the date.

So I’m feeling a bit compulsive and pleased, now. And tired. Tried to go to the library, but the lights are made of some sort of migraine-creating forcefield that also happens to emit visible light, because within ten minutes my eyes and head ached. I feel sort of spoon-drained now.

I’ve been blogging here for a year, and nearly a hundred posts.

There have been two Kate-lyric exceptions (both for MBT fangirling) and this will make my 97th published post. In this time, I have:
-Used lyrics from “Caught in the Crowd,” “Dreams,” and “The Truth” six times each (fun fact: I don’t like “The Truth”!)
-Used lyrics from “Blah Blah Blah,” “Day After Christmas,” “Our Song,” and “Out and In” five times each
-These seven songs account for 39% of my post titles
-I’ve used 34 songs, 32 of which are part of the official discography (including Elsewhere, Kate’s previous band). Including Elsewhere there are officially 54 songs (not including multiple releases or versions of a song), and I have an additional 32 or so demos. I think I’m going to have to make an effort to use all of the released songs for a title in the coming year. No promises.

In less compulsive, more personal news, I’ve had a bunch of interviews for jobs. The one I like best is for a group home and assistance organization in Chapel Hill who work with kids and adults with intellectual disabilities, developmental disabilities, and some neurological disorders. In practice this means a lot of people on the autism spectrum, some with Down Syndrome, some with CP, many with more rare disorders and disabilities, and a huge variation in levels of assistance needed. I knew it would be a good fit when the interviewer went off on a long tangent about how their clients are people and have every human right we do (I guess I passed for NT yesterday), even if they also need some help with ADLs or holding down a job. He used some language I only hear in the disability rights movement and stressed that you have to respect everyone as an individual or it would never work. I have a follow up interview tomorrow (after the first yesterday), so hopefully it works out! I’ve also interviewed for an in-home counselling position, and didn’t get a job at a local bookstore–but I did get an interview at a sister store later this week.

AT NO POINT DID I BREAK DOWN INTO SOBS OF FRUSTRATION OVER THE AMOUNT OF MONEY I NEED TO SAVE TO SUCCESSFULLY MOVE TO MELBOURNE.

I credit the cat and his soft, soft tummy for this. Little known fact: sticking your face in a cat’s side and breathing deeply is incredibly good for destressing.

I’m looking for something that will keep my brain occupied. I love anagramming and the last phrase was very successful. I want a two or three word phrase (maybe four, if one is an article) that is easy to remember and has 20-25 letters. The last one was “the very hungry caterpillar” and it worked really well. Suggestions?

Grading People from Rolling Credit on Vimeo.

A short commentary on the use of the terms “high functioning” and “low functioning” as applied to autistic people

My attention span is currently at a level I would describe as “kitten.”

I’ve known for a long time that my attention is directly correlated to the interestingness of the material–this isn’t unusual for kids identified as gifted (nor the adults they grow into), or anyone on the spectrum. In fact, it was this extreme hyperfocus that first had me questioning if I might be on the spectrum as I read tales of kids and their encyclopedic knowledge of topics and saw myself. This one time, I drew the same picture with only minor variations a couple hundred times; I was nine. I suspect I could still draw it.

I’ve also known for a long time that if I’m otherwise engaged, I can pay attention to topics of less interest with some reliability. In a school setting, for example, I’m usually really strongly into one class and then have varying levels of caring about the others–just like anyone else. Because of that high interest class, though, I have this sort of carry-over attention effect making it easier to pay attention to other material that is not as engaging for me. This has led me to the conclusion that I do well in moderate to high stress environments, but yesterday I started thinking (a rare thing these days when my mind lands on a topic and only stays for a few minutes at most), and this may not be the case.

There are different kinds of stress. Google thinks there are three–acute, episodic, and chronic–but that’s not what I mean. Those factors certainly play in, but I think stress can and should be divided by what part of you it engages, not just the length. Intellectual stress would be things like heavy schoolwork, complex reading material (fiction or no), non-rote professional work, puzzle solving. Emotional stress is identifying your own and other people’s feelings, social cues, working with other people. Physical stress could be identifying sensations (like needing to pee or being hungry), things that involve physical labour, or enduring discomfort (like working in a too-cold or too-hot place). Some combination of three things creates the stress, and that can then be chronic, episodic, or acute.

By this system, I really like things that are chronically intellectually stressful, with low levels of emotional or physical stress. I don’t like to move or worry about what my body language says. That is…not how I would currently describe my life. So even while I feel stressed, worrying about money and the cat and immigration, it isn’t the sort of stress that puts me in a position to spend a lot of time thinking. Those stressors are not comfortable for me, so they use up many more spoons than the stressors I like–and because I’ve wasted those spoons, I can’t do the things I enjoy (like reading scienceblogs) which could potentially refresh my spoons.

When I’m stressed–in the bad, not comfortable way–my memory and attention are spotty. I need to have a constant stream of intellectual information coming in–and going out, such as via blogging–to feed my own ruminative processes. Not only do I think they are a good thing, I now think they are essential to my well-being. When I am taking in enough information to have a viable ruminative background process going, my whole mind is working in concert, concious, unconcious, and memory. Being able to ruminate this way requires a precise memory, which is the first thing to go when I’m under stress (I often have no memory of meltdowns, for example–they’re just missing or I have a handful of photograph-like images).

I have been incredibly, risably forgetful lately–and lucky Kit doesn’t mind. Things we discussed multiple times have slipped my mind as if they never were. There is no sense of loss, of having forgotten something. My memory is not recording in the first place. Even when she reminds me, often with my own words, they feel new, unseen.

We talked about it yesterday, and I think it shifted my brain into the right gear to ruminate, because it hit me this morning, how all of this is connected for me: I need intellectual stress (and preferably as little of the other kinds as possible) to function well; I know alternate sources for this when I am not in uni; when I do not get this stress I become unable to seek it out because my will to live attention span grows shorter and shorter the longer I go without; this correlates with an unusually poor memory; these things are because with information coming in, I am able to ruminate properly (like any good ruminant and/or monster), because it is an adaptive and helpful process for me rather than being a destructive way to rehash bad memories or thoughts; therefore I have to just force myself to do something brainy, because it will sort of kickstart the whole process and I will stop feeling leaden. Which is…a helpful conclusion, and hopefully writing this will have done enough kickstarting I’ll no longer feel like my brain is dribbling out my ears slowly and painfully.

Just got back from my diagnostic interview at TEACCH. I have forms to fill out and turn in, at which point I will be on the wait list for an official diagnosis. As I “passed” the intake interview round, they agree that I’m almost certainly on the spectrum and want to work out precisely where (useless as that may be in 2 years and the new DSM). Having my mom there was, in a lot of ways, anxiety provoking, but it was also really helpful to have someone corroborate stuff from my childhood, and she remembered things I didn’t or couldn’t. I’ll do the forms over the weekend and take them in Tuesday.

The interviewer was very nice, and didn’t seem bothered at all that I made it through college before I needed help–she said that it’s not unusual with the adult population they see. I knew at that point that this would be alright, that they weren’t misinformed or lazy or ill-equipped. They work with people like me.

I have a job interview tomorrow to work as a youth counsellor for an outreach program. I really hope it ends in a job. Oh, a job. Never thought I’d miss that.

Please allow me to begin with shouting. If anyone loves me $13 worth, I am SO EXITED.

Anyway.

I’m constructing a post about spoons and variability thereof and executive function, but, ha, I do not currently have the ability to construct this in a manner that is grammatically correct or readable. I will return to the topic when I can think in words again. It’s hit me that my first (FREE!) diagnostic session is this Thursday and I should probably link mom to some autism inventories so we can compare notes.

Damn. I missed Autistic Pride Day, due to the fact that I was driving back from a visit to Staunton and Stina and Dylan, and then there was family and small children here.

So, thanks to stark. raving. mad. mommy‘s post about it, I’ve been inspired to do my own top ten list.

The top ten advantages and disadvantages to my being on the spectrum:

Disadvantage 10 – I’m not always good at communicating clearly and with words other people understand in face-to-face or other spoken conversations, and often miss details because of it.
Advantage 10 – I’m very good at being precise in writing.

Disadvantage 9 – Tiny incongruencies stand out to me, which can be very distracting when reading books with little plot holes or talking with friends.
Advantage 9 – I make a really awesome fact checker and editor.

Disadvantage 8 – My palate is limited by both tastes and textures that I like and dislike, so I end up eating a lot of the same foods over and over.
Advantage 8 – Those foods are often green vegetables, and it makes cooking and grocery shopping low-stress when they could be overwhelming.

Disadvantage 7 – I have trouble picking up on body language that isn’t exaggerated.
Advantage 7 – I can read cats’ body language fluently.

Disadvantage 6 – Large groups of people are overwhelming and likely to make me be very quiet.
Advantage 6 – I make a good listener (when I can hear!).

Disadvantage 5 – When things don’t go exactly how I envisioned them or follow the rules, I quickly progress from annoyed to downright upset.
Advantage 5 – I can plan out how things should go and even plan when I need to be flexible and when I don’t.

Disadvantage 4 – I become obsessed with topics, sometimes quite briefly, to the exclusion of all else.
Advantage 4 – I know a lot about a lot of things.

Disadvantage 3 – My memory can be tricky–I remember things I don’t need to save, and forget why I walked into a room.
Advantage 3 – The semi-photographic quality makes it easy to remember visual information like puzzles, maps, and book layouts.

Disadvantage 2 – I do things the same way over and over, even when it’s not necessarily the best way.
Advantage 2 – I learned to draw by redrawing a picture from a book hundreds of times.

Disadvantage 1 – I have trouble making friends because I’m never quite sure when the right time is to say things or volunteer information.
Advantage 1 – The friends I do make are very close and like me anyway.

In conclusion, here is a slightly blurry picture of my cat wearing a bow tie.