Currently viewing the tag: "ali"

So, when you get unfriended in facebook, is that the point where I have to stop referencing them as if I have actual friends so people at work think I’m less of a freak? Because my circle of friends is pretty much limited to Hez, Kit, and Sarah right now. I think a huge, huge part of me has been thinking that when I get back in therapy (next week? Might’ve found someone I like finally), I’d work out how to forgive and forget (not skills I currently have) and we could be friends again. I guess not.

Will I ever stop feeling so sad? I can’t even make steps towards making friends here because everyone gets measured against the litmus test of fucking Stina and Dylan. I want best friends. I want my best friends again.

I’m a failure.

I miss Stina and Dylan.

I have a lot of other things I could, and probably should, say, too. Things about how I can’t forgive people who aren’t sorry, and how I still start to email or text to tell them little things before I remember we’re not speaking. Things about how I cry pretty much whenever I think about them. Things about how I didn’t volunteer to go to Harrisonburg for training at work because it felt too close. Fuck, I want to tell them how we’re going to Disney, because they (especially Stina) love Disney. I want to tell them the diagnosis is official, and doesn’t that make them feel shitty for the snide comments and scare quotes?

I want to tell them everything. But we aren’t speaking. And I can’t forgive people who aren’t sorry.

I’ve been officially labelled.

It’s been a long time coming; years of wondering and researching and affirming have built to today. I’ve dissected my thought patterns, my behaviour, my exchanges with other people, and it all led me back to autism. I knew. Now I have a bit of paper backing me up.

My official dignostic label is Asperger’s syndrome. The highlights from my meeting include a persistent-tending-towards-unhelpful eye for pattern and detail, excellent verbal communication skills with few nonverbals to back them up, and literal thinking. These are all things I’d remarked upon before, and it feels reassuring to have professionals notice and remark upon them, too. No matter how dutifully one tries to be introspective, there is a certain point at which no one can tell truth from personal fiction, and I had a persistent fear I’d somehow crossed that line despite how well the category fit.

It was interesting to get to experience the ADOS (section 4) and speak with someone who is also passionately interested in autism for hours. I regret missing the cue to ask about my examiner’s autism-related blog (completely missed that), because I think it would be interesting to read (though, as I actually responded to her telling me she blogs about autism, I’ve probably read it!).

Parts of the interview were really difficult. It’s frustrating to discuss emotions and when I feel them when I struggle to identify those things at all and the categories she presented felt artificial. Does anyone feel just sad or just angry or just anxious or just afraid? How can you tell which one it is? They’re all jumbled together for me and I don’t know I could separate any of them (save maybe fear) into its own box and label it appropriately. It was also really hard to talk about Stina and Dylan and how I felt about being lonely. I’ve felt a bit raw about them since we fought and especially in the last couple of weeks as Kitty and I try to plan going to Disney, a place I associate strongly with Stina and Dylan.

Part of my interview involved working out the story of this book. It’s beautiful and the illustrations are exceptionally detailed–just the sort of thing I like. Apparently I saw things that no one had ever mentioned before in those details. That’s me: missing the big picture half the time, but wonderfully observant about things that interest me.

I want to thank TEACCH for providing this service to me at no charge. It means a lot to have an official diagnosis in my pocket in the event I do need any sort of services or accomodations, and it means even more that the state of North Carolina makes it available for all residents who need it.

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A memo to all of my coworkers, who will not, of course, read this, because if I told you what my website was I’d have to self-censor more and I’m super uninterested in doing that:

Yep, you heard me correctly, I’m autistic. See, autism is a vague group of behaviours and ways of processing the world we all share, and no two people on the spectrum are identical any more than any two people who are NT are identical.

You’ve seen me stimming, but apparently without knowing about autism you’d just thought I was fidgety. Ha! Trick’s on you: stimming IS just being fidgety for people on the spectrum. We stim for the same reasons any other person might tap their feet or shake their legs in a meeting: it provides sensory stimulation that helps us regulate our behaviour and emotions.

The thing about autism is that it makes me really awesome at some stuff, and really not awesome at other stuff. My particular, unique brand of autism makes me really good at learning scripts (“Please let me put this thermometer back under your tongue along the gumline.”) and repetitive actions like taking a blood sample. It also makes me really bad at some stuff I have to do at work, like multitasking and listening to multiple things at the same time. I’m sorry you were speaking to me and I walked away–I was busy hearing the faint harmony line in this song on the piped-in radio station.

Autism also makes me prone to these things that I’ve called a few different names in the past: panic attacks, tantrums, meltdowns. They happen when I’m feeling overwhelmed and without any control (and usually when I’m tired and/or hungry). I know my limits and my strengths, and ask that they be respected like any other person’s–even if they seem like they’re weird.

When you start requiring me to do multiple things I’m really bad at (like listening to two imputs and multitasking at the same time), there is a very strong chance I’m going to have to go cry somewhere and might scare off donors.

Can we please not make that happen? And can we please not laugh at me when I ask?

Thanks.

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Suffice to say, as far as the job goes, that I am officially prohibited from talking about it, as a Big Pharma Shill of the lowliest rank. I’m enjoying it and seem to be learning quickly.

I wish I could say that I learn quickly in the rest of my life.

My Official Autism Eval Thing is scheduled for this February 18th, and I’m feeling sort of numb about the whole thing.

I’ve started to wonder if perhaps feeling neutral or numb is some sort of response to having too much emotion or feeling, at least some of the time. There is absolutely a point where I am so physically uncomfortable that I become unable to experience further discomfort; in the reverse, I’m capable of being pretty physically neutral, neither exceptionally comfortable or uncomfortable. There are times that I really do feel neutrally about a given subject or event or person or any other direct object of my emotions, and this is an appropriate level of shit-giving. But there are times that I probably should feel more intensely than I do, and recentish events have caused me to reflect if that’s not some sort of really terrible coping mechanism.

Bluntly, I feel…okay about Christina (and, by default and/or tacit agreement and not ever talking to me, Dylan) ending our friendship. And I don’t think I’m meant to, quite yet. I spent days and days heartbroken and crying randomly; it was even worse than when everything ended with Alice because there were almost three extra years involved–three years we’d largely spent living together or next door to one another. And then I woke up, and it was all just gone, and that seems really weird to me. It makes much more sense that my brain decided that this level of emotion is just not viable long-term and turned the whole thing off for a while. That, in turn, helps explain a lot of weird emotional things I remember, both recent and not recent.

I think this level of sensation is directly correlated with meltdowns, for me, at least. And I think that this self-control response of total shutdown of emotion probably has the potential for weird neurological effects, like the part where I don’t remember a lot of the particulars of really nasty meltdowns. I think that my brain is trying to insulate me from feeling everything so strongly and acutely that it becomes difficult for me to even remember the events as they actually occured, because my memory is fuzzy to prevent me from feeling those things again. It’s not a perfect system, though, because I do remember some snatches of image or sound, and the further away temporally I get from any event the better my chances of remembering or feeling it properly are.

I spent a little over a month not feeling anything related to Stina and Dylan.

A coworker made a joke about not having any friends, and I responded that my friends had abandoned me. I got home tonight, and started to cry. The only real way to deal with this emotion and hurt and anger is to feel it, and work through it. Apologies in advance for any meltdowns it triggers, but I think I’m ready to do this like an adult. Maybe.

Damn, I need a therapist. As soon as my shiny insurance card arrives (seriously good insurance for cheap, yes please!), I shall have this thing.

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Like Hez, I don’t believe in resolutions. I think you can set goals and have dreams, but timelines are invariably off and there are always surprises that change who you thought you were.

I’ve been thinking about how this blog has moved away from blogging my thoughts on autism and feminism and become more of a journal. Neither are really what I imagined when I started writing in this space, and I’m not sure either is what I want to be doing here.

So I don’t believe in resolutions, and I don’t know what I’m doing with this space.

I want to change my life so that it’s designed to make me happy, not to make me feel rotten. I’m starting a new job next week. I’m getting my new name in my passport soon. I’m getting Prosper’s import certs and making plans. I’m making plans. And I think I can learn how to be happy in a way that can be measured beyond moments.

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It’s been an interesting week.

Yesterday I quit my job, the one I didn’t like and had to drive an hour each way to do. I have interviews scheduled and a lot of hope, and a lot of horrible anxiety, which is why I now have vanilla coke. It helps.

Thursday and Friday, I exchanged emails with Stina which curiously involved me apologizing an awful lot and her not at all, because I very strongly value having her as my friend even if she isn’t a nice person (1). I also learned from Kitty that generalizing lessons about emotional intimacy is probably a good move. Huh. Anyway, this led to an awful lot of sobbing and feeling pretty much like I must be broken in some way to not be able to sustain my friendships from college. And that led to…

Opening an email from Alice. It’s been sitting in my inbox, marked as read, for just over four months. I didn’t open it originally because it was two days before I started my new job (which turned out terribly anyway) and I might not make a personality disorder out of it, but I can certainly be avoidant. I didn’t open it later because it’d been a long time. Then I didn’t open it out of habit. So I opened it, and it was a very long, beautiful, heartbreaking apology letter (I habitually distrust email subject lines, so the fact that it said it was an apology didn’t convince me). It was everything I would love to get from Stina and Dylan and don’t really expect.

So then I cried some more. And then my job was over and I slept for ages. And then I went to the farmer’s market with my mom and we bonded (! I KNOW!) over apparently being unable to make our loved ones feel emotionally connected to us because we are demonstrative sort of people, not declarative, and apparently that makes people really annoyed. And then I wrote a blog post about it using really terrible grammar.

AND THEN I DECLARED THAT I AM A ROBOT MADE OUT OF MUSCLE.

And then it was over. Except for a footnote.

1. I would like to know why it’s okay to say that when we’re friends, but not when we’re fighting. I genuinely do not understand the difference. I’m expressing the exact same sentiment, but it was hilarious once and now apparently elicits tears.

It’s slow, this process. Change passwords, make previously open things private. Extricate myself from your life one photo at a time.

I cry, sometimes without warning or explanation. I am relieved, grateful when my coworkers say they’ll miss me, give me phone numbers and talk of a party. Parties terrify me; I loathe them to the depths of my being, but they don’t have to know any of that because I appreciate the consideration. None of them are friends, but they’re nice enough people.

We talked about that, once. Friendship was an exclusive club to the two of us, something we extended rarely and selectively. We talked about how valuable it was, and how glad we were to have found each other. I believed every word of it.

I believed every word of it. You told me, so it must be true.

I doubt you think of me, or miss me, or have any regrets. Spending a day with your husband (and his friend) was more important than seeing someone who had been your best friend of seven years, at considerable expense and travel on my part. You’ve never seen where I live. Coming to me has never been an option. I’m only worth your time if I show up and do what you want me to do.

And fuck you, because I would forgive you if you fucking asked. If you had the decency to write and say you missed me, you’re sorry, any gesture of reconcilliation or apology, I would fall over myself to forgive you, because you are my best friend of seven years and I hate not having you in my life. Even though my family have told me time and again that you are not worth my effort or love or trust.

You’re not a nice person. I hope someday you realize it, and feel bad.

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Lots of thoughts, not a lot of brains.

Two important things have happened, however.

1. I will be done with my current job on December 17th. No, I do not have another job lined up (though I’m applying and interviewing). I am surprisingly not too anxious–yet.

2. I cut off all of my hair.

WHERE DID MY HAIR GO?
[Picture of the author, who has short, red hair and is doing their best Lesbians Who Look Like Justin Bieber impression]

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I stopped being friends with Alice when she blew me off.

Alice and I met within days of starting at Mary Baldwin. We auditioned for and joined the Madrigals together, and just hit it off immediately–similar senses of humour, both smart and curious about the world, and rather similar politics (though her Catholic homeschooled background made it hard for her to admit she was liberal, let alone progressive). She was one of my very best friends for the three years I was in college. There were regular rumours we were dating, we were so close.

I left and went to Australia and my girlfriend (much to Alice’s annoyance) and tried to keep up our friendship. I wrote in my then-blog, I wrote emails, I called a handful of times. The burden of maintenance was mine, but it was okay: I’d get back to the US and see her again and our friendship would properly pick up where we left off.

Except that it didn’t.

Alice and I made plans as soon as I knew I’d be back in town. Kitty was with me. We’d meet for coffee and catch up and everything would be great again. But Alice didn’t come for coffee; she blew off our date entirely to make an “emergency” trip for cold medicine for her (adult, able bodied, car-owning) roommate and then never rescheduled.

I put my foot down. Alice had blown off small things with me in college, and I’d always forgiven it. I knew that I liked more concrete plans than she did, and that she had many friends who were cooler than I was, so there was always a chance of being left for a better time. At the end of our second year, she decided unilaterally we shouldn’t be friends anymore since I was just going to leave anyway and she was bad at keeping up friendships; it was only after I pleaded to keep my best friend that we stayed close for the last year. Being ignored to baby the person she lived with was the last straw for me, and I cut Alice out of my life. We’ve exchanged emails once since then, which were unproductive, and she emailed me in September. I haven’t opened it. It’s been two and a half years since I lost my best friend.

Stina and Dylan were there when we fought: Kitty and I were staying at their house on that trip to Staunton, before I moved back to my college town. They were there when Alice and I fought over email–hell, Dylan was the one who opened the first email for me and read it, so he could warn me if I wanted to read it or not.

I’ve known Stina and Dylan since about a week into my first semester at Mary Baldwin. We met when I joined the queer/feminist group on campus, which Dylan and I would eventually co-run. They were my other best friends, complimentary matches for me and each other. It was a little easier to keep up with them when I moved, because calling one meant getting both, and they opened their house up without hesitation for us when Kitty and I arrived in the US. They invited me to live with them while I figured out what the hell I was going to DO with my life.

I don’t know how to write the collapse of our friendship. It’s raw and it hurts and none of the paragraphs I’ve started in this space are accurate.

I felt left out, ignored. I saw patterns in their treatment of me that made my heart ache with loneliness. I watched them each grow more unkind and reassure each other that it wasn’t so. I felt entirely unrespected. I couldn’t talk about it, too afraid to bring up small hurts but dwelling on them endlessly until they became big hurts and then I’d explode. But by then they’d forgotten the small hurts and I was making something out of nothing. For a psych major, Dylan is fucking terrible at introspection.

I was told, explicitly, that I was not autistic because i didn’t match his expectations of what an autistic person should be. I was told I was a lesbian, and any attempts to restate my actual identity were dismissed as trivial. I was told that genderqueer people don’t exist or are just indecisive. I was told I was petty, and rude, and embarassing to take out in public. I was told I was mean and hateful. I remember every fucking word that was said to me. They inform my self esteem and my sense of who I am and sow seeds of doubt deep into my heart.

We fought again and again. My therapist told me they were poisonous, no good for me.

I wish I’d listened to her. I wish I’d been able to listen to her. I defended them vigorously and angrily. How dare she say that about my only local friends?

I moved away in April. It was for the best; they hurt me again and again and while nothing seemed to change on their side, I felt broken and tired. I ended up here. I saw them in September for their wedding.

“Come for Thanksgiving. We miss you!”

So I asked off for Thanksgiving. I asked when they wanted me to come up. Two weeks ago they broke it to me: I’d be welcome to come, but they had no guest bed and were planning to spend black friday on a prolonged date.

Wait. So I’m welcome to come up, but I have to spend one of 3 days with them by myself because I am less important than them–married to each other, living together–having a date.

I didn’t go. They got their black friday together. I got time to myself without being touched and harassed and quiet. Lots of quiet.

“Dylan Grey had an awesome black fridate. All of my shopping is done. ALMOST. Lovely day with Christina Scott Sayer Grey, with delightful guest appearance by Megan Kolano. Tangled was GREAT. Bella is cuddly. Dylan out!”

They let a friend join them after all.

I think this is the point where I say I’m done.